by Jennifer | Jun 15, 2021 | Blog |
I’m happy to report that my pain pump is working well. It seems to be the right dose now and I hardly have to take any oxycodone or use the extra medicine from the pain pump. Once we get through the refill process and things seem ok, we’ll start talking about taking another patch off.
Tomorrow, Wednesday, I have an appointment at 1 pm to have my pain pump refilled. I know the procedure and what is coming , but I’ll be honest, I’m very scared. I’m scared about pain. Even though the Dr. says I shouldn’t have any pain from the refill, I am very scared. Ever since my time in the hospital in severe pain, my brain thinks about things differently. I’m struggling with severe anxiety, about everything. I felt so out of control in pain for so long, I’m afraid of that happening again.
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by Jennifer | Jun 16, 2021 | Blog |
My pain pump refill went well today. The Dr. numbed the area with some lidocaine and took out the little bit of medicine that was still in there. Then he put in the new medicine. It was pretty quick and relatively painless.
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by Jennifer | Jun 22, 2021 | Blog |
I’m so tired, so hopefully I can type well enough for a quick update….
My pain pump refill went really well last week. I had no extra pain. Praise God! I haven’t had to take any Oxy this past week (with the exception of yesterday). The pain pump and Fentanyl patches on my back and doing a good job of controlling my pain the majority of the time.
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by Jennifer | Jun 25, 2021 | Blog |
Scanxiety was tough this week as I awaited my bone scan today. It went fine. Now we just wait for results and a discussion with the oncologist.
We drained my lung last night and the color of the fluid was back to normal. Praise God for that!
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by Jennifer | Jun 26, 2021 | Blog |
Tom asked me the other day if there was anything big I’d like and try to do sometime soon. Besides going back to Disney World and having a personal tour guide, I couldn’t think of anything. Lol.
Our trip to Disney World was amazing. It’s something we will all remember for the rest of our lives. I am forever grateful for the chance we had to spend together as a family and relax….the chance to not think about terminal cancer for a few days….the chance to laugh and smile like we haven’t in such a long time. We really needed it and I smile every time I think about the trip.
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by Jennifer | Jul 5, 2021 | Blog |
I fell. Yep. I fell, hard. And I was home alone, which NEVER happens anymore.
Tom went to drop the girls off at a friend’s house for a 4th of July party. We had plans to join them around dinner time. I got up from my recliner and I was sliding my foot into my Croc slipper and fell to the left side. There was a chair near me which I knocked over, but I think that helped cushion the fall a little.
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by Jennifer | Jul 6, 2021 | Blog |
I’ve talked about scanxiety before. But there is also worry and anxiety that goes along with knowing you have an important Dr. Appointment the next day. I’ve been trying to keep my mind off of it, but have only been a little successful today.
Please pray I can sleep well tonight and not be to anxious tomorrow as I wait to meet with the oncologist at 2:20. Thanks friends!
by Jennifer | Jul 7, 2021 | Blog |
I have written a few versions of this post, but, keep deleting them. This is a hard one to write.
I have decided to stop active cancer treatment.
While my scans came back OK, my quality of life has gone downhill a lot in the past couple months while on this chemo.
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by Jennifer | Jul 10, 2021 | Blog |
I sleep and 36 hours straight. I haven’t sleep well in long time and I guess my body finally made up for it, or part of it. I’m still tired. So crazy.
Tomorrow at 9:30am we have a meeting with a nurse from Providence hospice and then we plan to head to church for the second service.
I will be glad when the first meeting is over and we have more details. I don’t have any questions, but I’m sure there are many things we don’t know about it.
I’ll write more when I know more….
by Jennifer | Jul 11, 2021 | Blog |
Tom and I met with the Hospice intake nurse today. It went well and she answered the few questions we had, went over medications and is going to be putting in an order for me to have oxygen at home. I’m hoping that will help a little.
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