I’m happy to report that my pain pump is working well. It seems to be the right dose now and I hardly have to take any oxycodone or use the extra medicine from the pain pump. Once we get through the refill process and things seem ok, we’ll start talking about taking another patch off.

Tomorrow, Wednesday, I have an appointment at 1 pm to have my pain pump refilled. I know the procedure and what is coming , but I’ll be honest, I’m very scared. I’m scared about pain. Even though the Dr. says I shouldn’t have any pain from the refill, I am very scared. Ever since my time in the hospital in severe pain, my brain thinks about things differently. I’m struggling with severe anxiety, about everything. I felt so out of control in pain for so long, I’m afraid of that happening again.

Today I made appointments for my bone scan and CT scan to see if this current chemo is working. So now I’ve added scanxiety to my thoughts. In the next 3 weeks, I’ll be going to chemo, getting my pain pump refilled and having 2 big scans. After we know the results, we’ll have some big decisions to make. That is what lies in front of me.

This past week, I’ve been hiding out in my room watching TV and sleeping a lot (or trying to) because I am struggling with everything going on in my mind. I’m trying to live in the moment, but am completely and utterly failing, I’ve had to take some extra anxiety medicine to help calm down. I’ve spent a lot of time in prayer asking the Lord to help me not to worry and to take one moment at a time. I’m failing though and not sure what to do. So I’m hiding.

Tom is taking me to have my pain pump refilled tomorrow. I’m glad he’s able to be there with me. Then my CT is on July 2nd and my bone scan I scheduled for late July accidentally, so I have to reschedule that tomorrow.

So just a quick report tonight. Sorry it’s such a downer. Life is hard. Thanks for continuing to pray with us and thanks for checking in on us.