Surgery went well today and we were home by about 10:45 am. I slept most of the day. It’s a little uncomfortable but I’ve only needed to take one pain pill which is actually two less than I took yesterday.
Time seems to be moving very slow right now. I’m not sure why.
The girls are back home and I’m glad we are all back together as a family. ❤️
I went in to see the oncologist before my covid test today because my pain is not under control anymore. I’m going to keep going with the long-acting morphine, but I’m going to switch to Dilaudid for breakthrough pain during the day. I’m hoping that will help.
After he poked around on my back and ribs, the pain is from the T9 area where I had that cement put in and it is radiating around my left side for some reason. My entire back hurts to touch or lean against something. It’s just all very tender.
I was in a lot of pain after he poked around on my back and ribs. As I got up from the table and walked a few feet back to my chair, I was out of breath. That was the first time I realized I was out of breath from pain. I just was thinking I was out of breath from being out of shape. Tom says he has noticed that and known it for a while.
Around 2:30 today I took Dilaudid and it took the edge off my pain. I noticed it didn’t hurt quite as much when I got out of bed. I have to figure out the exact dosage and how often I want to take it. It of course has the side effect of constipation just like all the rest!
He also recommended calling the orthopedic doctor and seeing if they could do a steroid shot near the T9 area to see if that would help. We’re not sure if we’re dealing with bone pain or nerve pain.
We have to be at the hospital at 6 a.m. on Thursday morning for my port placement. It’ll be nice to have that done so early in the morning so I can have the rest of the day to relax.
Chemo officially starts on Monday at 2 pm. If my port isn’t clogged, it should only take a few hours from what I remember. Someone asked me the other day how long I will be taking this chemo for. The answer is, for as long as it works. Then I will switch to another one. I will do that for the rest of my life until we are out of options, or we decided that my quality of life is too horrible and we decide to stop. I’m spending some time reading back through my blog so I can remember what it was like during this specific chemo drug.
For our 25th anniversary, we had planned to go on a cruise or another vacation and have the kids spend a few weeks down in Southern California with Tom’s parents. Because of my health and COVID, that trip didn’t happen….but I think something better did.
The girls have been down in CA for almost 2 weeks. That means we have had the house to ourselves (and clean) for 2 weeks!!!!
We’ve had so much time to talk.
We’ve done some projects together.
Tom has worked.
I have rested and done some things around the house.read more…
The MRI shows a fairly large tumor in L3 (vertebrae in my lower back). The only other scan we could compare it to was one in October and it has grown since then. We don’t know how recent the growth is. There are a bunch of smaller tumors in other vertebraes as well, but the larger one is most likely what is causing the pain. For now we are going to wait on the CT scan on the 23rd to give more clarity.read more…
In my last post, I asked for people to send me verses of encouragement as I was really struggling with anxiety with everything going on this week. I was so blessed and encouraged by the verses you sent. Thank you so much! My MRI was quick and easy yesterday and the rest of the day I felt at peace and was able to relax.
I’ve compiled all of them below and I hope they will be an encouragement to someone else as well.
Some of the scriptures reminded me of songs, so I’ve included those next to the verses.read more…
Below was my prayer journal entry this morning. I decided to share it instead of writing it all out again. There are a few things I’m taking out……..out of respect for my family. 🙂
Lord, this is a hard week coming up. I had trouble getting to sleep last night because I was thinking about everything coming up. I also kept waking up last night thinking about all of it.
I have an MRI on my lower back on Tuesday and then we find out the results on Thursday. That will tell us if the orthopedic surgeon can help with the pain, if I need physical therapy or if it’s just the cancer causing the pain and I need to work with Dr. Leung on it.read more…
Between COVID and the pain I’m having in my back, we decided to change our plans for the weekend. We were looking forward to getting away and staying at a hotel in Wenatchee. But it looks like that area isn’t a good place to visit right now with me being at high risk, plus I can’t do anything for more than 20 minutes without severe pain.
I’m not asking for much. I just want to be able to go the mall and find summer clothes with my girls. That’s a normal mom thing. Our girls have grown so much the past few months! It’s crazy. Two are in desperate need of clothes and shoes.
We have ordered a ridiculous amount of things online but very few fit. Amazon and the UPS Store must love all our returns. The mall was the next choice.
I had my follow-up with the orthopedic surgeon today. He was glad that the surgery worked but was sad that other parts of my back were still hurting. He recommended getting an MRI done on my lower back now that insurance has approved it. We’re going to do that to see if there’s anything he can do to help it, or if possibly some physical therapy might help. I will call on Monday to schedule the MRI appointment.
I think it did! I don’t have any pain in that part of my back anymore. However, I’m still having pain in my back, just in different spots. I don’t know if by putting the cement in that muscles are being used differently and I’m just having muscle pain, or if it’s something else. I’ll talk to the doctor about it at my appointment on Friday. So for now, I’m on the same amount of pain medicine as before surgery.