Day 1 of the New Poison

On Friday when my prescription arrived, Tom called throughout the house, “Your new poison is here.”

Nice.

I take two pills in the morning and two at night. We’ll see how it goes!

I’m still waiting to schedule my MRI to find out what is going on and why I am in more pain.

Orthopedic Dr. Apt. Today

My appointment with the Orthopedic Dr. went well today. We are going to do an MRI of both the upper and lower spine to determine the best treatment. He’s thinking it will be a Vertebroplasty which is basically like putting cement in the middle of the bone that is fractured.

He didn’t see any new visible fractures on the X-Ray he did today. He said an MRI will confirm that and show us exactly which vertebrae(s) would benefit from the procedure.

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Appointments Today

I was able to sleep some last night since the pain was under control. I can stay on these pain meds for a while until we figure out what is going on with my back.

My blood pressure was low so they are giving me some fluids as my infusion appointment this morning.

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Lots of pain

Today is the third day my back is hurting really bad. On a scale of 1 to 10 it’s about a 7 and that’s after the pain medicine I’m on. Something is definitely wrong and I am really struggling.

I tried all day to get some extra pain medicine or find out if I could take more of what I have, but was unsuccessful. I just called the Dr. on call and got another prescription for tonight and found out how much more of the morphine I currently have thag I can take tonight. He also told me to add in two ibuprofen every 8 hours.

Please pray that this will relieve the pain enough so that I can sleep. I slept really horrible last night because I was in so much pain. I meet with my palliative care nurse during my infusion tomorrow, so I’m thankful to be able to discuss it more with her. I was also people to get an orthopedic doctor appointment on Wednesday to talk to him about strengthening my back somehow.

Please also pray for our girls and Tom as they see me like this. This isn’t something I can hide and I wish I could. Thanks friends.

New Medication

Tom and I just go off the phone with the Dr. and it looks like we are going to change chemo pills. Even at the half dose, my body just can’t seem to tolerate it without huge side effects, making life much harder that it would be than if I was just dealing with the cancer and no chemo.

The new pill is called Xeloda. It has many of the same side effects since it is a chemo pill, but the added ones to this are hand/foot syndrome (rash and/or severe dryness on the hands and feet), tingling in the fingers and hair thinning. Everyone responds different, so we’ll see how I do. I’m going to take a week off and then start the new pill. I will continue to get the bone strengthening infusion each month, as well as the hormone blocking shots.

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Infusion and side effects

I’ve taken the half dose of the chemo pill for about 2 weeks now. The side effects are under control, for the most part. It still seems pretty tough on my body, but for now, it’s tolerable, since we are stuck at home anyways!

Tuesday, I had my monthly infusion and shots. I’m always a bit wiped out from those. Today, the upper part of my behind is numb. The shot on the left side hurt going in and felt a little different. I think she might have been a little father over than normal and got close to a nerve. It’s not really painful, it just feels different than it normally does.

My pain is mostly under control. I just have to be very careful in what I do. If I do anything for more than 5 minutes (cook, clean, laundry, organize) my back really hurts, even all on the meds. Some days I just push through because I want to do something and feel productive. Other days I don’t. I’m getting better about asking the girls to do stuff around the house. It’s good for them and they have plenty of time!

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Scan Results

Scans showed the cancer has grown a little in some places, especially in my lower back.

Since I haven’t really given this current medicine a consistent try, I’m going to continue on it at the half dose level, working to manage side effects.

I’m feeling pretty good today, just really tired and fatigued.

CT Scan today

I called first thing this morning and found out my insurance had approved the scan. The scan was uneventful and went well. Unfortunately, Tom had to sit in the car because they’re not letting anybody but patients in. That was a bit of a bummer.

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CT tomorrow (hopefully)

I am scheduled for a CT scan tomorrow (Tuesday) at 1 pm, as long as my insurance has approved it by then. We have new insurance and this is my first scan with them, so I’m not sure how quickly they approve things. Plus, nothing is normal right now, anywhere!!

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Medicine Update

I talked with my oncologist on the phone today, instead of having an in-person appointment. To sum it up quickly, I am going to go back on the chemo pill (Piqray) but only a half dose.

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tom-and-jennifer-ovalMeet Jennifer

Breast Cancer Patient, Chef Wife and Mom

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Resources:

How to help a friend or family member with cancer
Resources for Cancer 'Patients
neuropathy after chemo

What to Expect:

Breast Biopsy
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PET Scan
port surgery
Mastectomy
Reconstruction
oophorectomy
Radiation

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