Appointment Update

All 3 appointments went well today. Tom is really sick, so he needed to stay home. I went to the infusion center by myself, which was fine. Cortney and Karin came last minute to my Dr. apt. and Tom was on speaker phone. We talked about managing constipation from the meds, trying to stop the zofran as that adds to the problem, taking a break from the anti-inflammatory, weaning off the antidepressant in January now that I am eating enough to take supplements again and taking Tylenol with codeine for back pain. We talked about what healing in my back looks like. Even if we can get rid of the cancer, it will be weak. So no lifting more than about 5 – 10 lbs…for pretty much forever. I will have a bone scan and CT scan in late January to see if the treatment we are doing is working. We also met with the pallative care nurse. She works with patients with chronic and terminal illnesses and helps with pain management and focuses on quality of life. Side effects from the infusion will hit Thursday night. I will be ready with pain meds so I can go to Molly’s first orchestra concert!!

Appointments this week

I’ve definitely turned a corner! I’ve had more energy the past couple days and I think I might be settling into my new normal. I’m still dealing with a few side effects, but I am thankful that the depression is gone and that some of my energy is back. I was able to do some Black Friday shopping with the girls on Friday and we went on a family date to see Frozen 2 yesterday. I stood the entire time of worship during church this morning as well. Still no where close to what I was doing a few months ago, but progress!!

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Happy Thanksgiving

It’s been a while…sorry for the lack of updates. I’ve been hesitant to write a post as I don’t want to come across as complaining. I also know my brain is in a bit of a fog and I’m not sure how coherent a post would have been a few days ago. 🙂 My brain has started to work again (off and on) and I have been able to get out of the house a little bit, although it makes me a little anxious. Home is just the most comfortable place to be right now.

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Update

Well, wish I had some fabulous news…but still struggling with some big side effects.

I met with my oncologist yesterday when I was at the infusion center. He prescribed an antidepressant and also a steroid to help give me energy and try to stimulate my appetite. The steroid works right away. The antidepressant in 2-4 weeks.

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I can eat again

I took 5ml of the oxycodone this morning and that’s it! I’ve been able to eat and drink all day. I’m not eating much, but it’s still progress. The Dr. said I would wake up one morning and it would be significantly better and I guess today was the day!

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ER visit for fluids

I spent a few hours in the local ER today getting some fluids. They made a big difference in how I am feeling overall. Today I was able to get out of bed and sit up on the sofa for a while, and even do a few things around the house. Not much, but at least I could get out of bed! I will get fluids again on Thursday.

Still no improvement in the pain in my esophagus. I drank 2 Ensures and ate tapioca pudding, a few roasted potatoes and some pork. I had to take a little more pain medicine to get that down though. But a little more food than than yesterday…♥️

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