Day 1 of the New Poison

On Friday when my prescription arrived, Tom called throughout the house, “Your new poison is here.”

Nice.

I take two pills in the morning and two at night. We’ll see how it goes!

I’m still waiting to schedule my MRI to find out what is going on and why I am in more pain.

Orthopedic Dr. Apt. Today

My appointment with the Orthopedic Dr. went well today. We are going to do an MRI of both the upper and lower spine to determine the best treatment. He’s thinking it will be a Vertebroplasty which is basically like putting cement in the middle of the bone that is fractured.

He didn’t see any new visible fractures on the X-Ray he did today. He said an MRI will confirm that and show us exactly which vertebrae(s) would benefit from the procedure.

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Appointments Today

I was able to sleep some last night since the pain was under control. I can stay on these pain meds for a while until we figure out what is going on with my back.

My blood pressure was low so they are giving me some fluids as my infusion appointment this morning.

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Lots of pain

Today is the third day my back is hurting really bad. On a scale of 1 to 10 it’s about a 7 and that’s after the pain medicine I’m on. Something is definitely wrong and I am really struggling.

I tried all day to get some extra pain medicine or find out if I could take more of what I have, but was unsuccessful. I just called the Dr. on call and got another prescription for tonight and found out how much more of the morphine I currently have thag I can take tonight. He also told me to add in two ibuprofen every 8 hours.

Please pray that this will relieve the pain enough so that I can sleep. I slept really horrible last night because I was in so much pain. I meet with my palliative care nurse during my infusion tomorrow, so I’m thankful to be able to discuss it more with her. I was also people to get an orthopedic doctor appointment on Wednesday to talk to him about strengthening my back somehow.

Please also pray for our girls and Tom as they see me like this. This isn’t something I can hide and I wish I could. Thanks friends.

New Medication

Tom and I just go off the phone with the Dr. and it looks like we are going to change chemo pills. Even at the half dose, my body just can’t seem to tolerate it without huge side effects, making life much harder that it would be than if I was just dealing with the cancer and no chemo.

The new pill is called Xeloda. It has many of the same side effects since it is a chemo pill, but the added ones to this are hand/foot syndrome (rash and/or severe dryness on the hands and feet), tingling in the fingers and hair thinning. Everyone responds different, so we’ll see how I do. I’m going to take a week off and then start the new pill. I will continue to get the bone strengthening infusion each month, as well as the hormone blocking shots.

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Dr. Apt. Tomorrow

I’m not sure how much longer I can handle this chemo pill. There are many days the fatigue and total body weakness is so bad I struggle to get out if bed. I lost another 2 pounds this week. I’m not sure what to do.

I have occasional good days. A few days last week I was out of bed a lot and able to help the girls with school. Mother’s Day, I had enough strength to go with Tom and the girls to a state park for a few hours for lunch. It was nice to do something that feet normal.

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Another week, another update

Not much is going on here…still working, doing online school, watching too much TV and playing too many video games…you get the picture. Nothing has changed as far as what I’m dealing with. Still struggling to eat. Still super fatigued.

I had an appointment with my Nautropath last week and he gave some recommendations to try and help with the side effects I’m dealing with. He started by having us put a humidifier and an air purifier in our bedroom. My mouth is still dry at night, but my eyes are not as bad. The verdict is still out on whether or not those are helping me sleep.

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Infusion and side effects

I’ve taken the half dose of the chemo pill for about 2 weeks now. The side effects are under control, for the most part. It still seems pretty tough on my body, but for now, it’s tolerable, since we are stuck at home anyways!

Tuesday, I had my monthly infusion and shots. I’m always a bit wiped out from those. Today, the upper part of my behind is numb. The shot on the left side hurt going in and felt a little different. I think she might have been a little father over than normal and got close to a nerve. It’s not really painful, it just feels different than it normally does.

My pain is mostly under control. I just have to be very careful in what I do. If I do anything for more than 5 minutes (cook, clean, laundry, organize) my back really hurts, even all on the meds. Some days I just push through because I want to do something and feel productive. Other days I don’t. I’m getting better about asking the girls to do stuff around the house. It’s good for them and they have plenty of time!

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