Time seems to be moving very slow right now. I’m not sure why.
The girls are back home and I’m glad we are all back together as a family. ❤️
I went in to see the oncologist before my covid test today because my pain is not under control anymore. I’m going to keep going with the long-acting morphine, but I’m going to switch to Dilaudid for breakthrough pain during the day. I’m hoping that will help.
After he poked around on my back and ribs, the pain is from the T9 area where I had that cement put in and it is radiating around my left side for some reason. My entire back hurts to touch or lean against something. It’s just all very tender.
I was in a lot of pain after he poked around on my back and ribs. As I got up from the table and walked a few feet back to my chair, I was out of breath. That was the first time I realized I was out of breath from pain. I just was thinking I was out of breath from being out of shape. Tom says he has noticed that and known it for a while.
Around 2:30 today I took Dilaudid and it took the edge off my pain. I noticed it didn’t hurt quite as much when I got out of bed. I have to figure out the exact dosage and how often I want to take it. It of course has the side effect of constipation just like all the rest!
He also recommended calling the orthopedic doctor and seeing if they could do a steroid shot near the T9 area to see if that would help. We’re not sure if we’re dealing with bone pain or nerve pain.
We have to be at the hospital at 6 a.m. on Thursday morning for my port placement. It’ll be nice to have that done so early in the morning so I can have the rest of the day to relax.
Chemo officially starts on Monday at 2 pm. If my port isn’t clogged, it should only take a few hours from what I remember. Someone asked me the other day how long I will be taking this chemo for. The answer is, for as long as it works. Then I will switch to another one. I will do that for the rest of my life until we are out of options, or we decided that my quality of life is too horrible and we decide to stop. I’m spending some time reading back through my blog so I can remember what it was like during this specific chemo drug.
Jennifer, I am so sorry you are in such pain. I love you and am continuing to pray for you.
Love you Jennifer! You are always in my heart and prayers!
So sorry for this difficult report, continuing to pray for you and the family.
We love you,
Chuck and Bobbie
Oh Jennifer you have endured so much. My heart goes out to you and your sweet family.
Lord hear our prayers.
I’m glad the Dilaudid is helping at least with some of the pain. Will continue to pray for your pain management and also a smooth start to the new chemo. love you friend!
Glad the girls had a fun time and you and Tom had a nice couple weeks! Continuing to pray for you all!
I wish I had eloquent words for you but all I can say is I am praying for you and your family. I see Him giving grace for each one of you for the day. Thank you Jesus for what you are doing in all their lives.
Oh friend. I’m praying for you. I love you. I wish there was something I could do to help.
Keeping you in constant prayer.
I love you,
Laura
Can’t even begin to imagine… but I feel for you greatly and am praying for all of you always.
Hugs
Jennifer, I am so sorry your pain meds. aren’t working for your back pain . Praying this Dilaudid will give you some much need relief. Hope your port isn’t clogged so you can start your chemo treatment on Monday.You have been and still are one strong young lady . Praying everyday for you,Tom and your sweet girls. God Bless you all . Hugs
Continuing to pray for more effective pain relief for you, Jennifer…both physically and emotionally. Thankful that you have such strong love and support from Tom and the girls…(and praying for them, as well!) Praying you will be able to sleep peacefully tonight…
Jennifer, My heart aches for you and all that you are enduring but I am comforted as I’m sure you are to know that the Lord is with you through it all. I will continue to pray for you, Tom and the girls as you trust in Him for each day and what it may bring.
Love,
Jan
I’m so sorry that your life is so revolved around both the pain and the impact of the disease. I will continue to pray the Lord’s guidance of each step and to carry you through the difficulties you face. Praying for you all and glad that you are enjoying some time together as family, too!
Ps. 119:50 “My comfort in suffering is this: your promises renew my life.” I pray that God’s promises will uplift you. He is your stronghold, He watches over you, God will guide you by His righteous hand, He is your ever present help, He cares for you. We’re praying for God to touch you & your loving family.