Time seems to be moving very slow right now. I’m not sure why.
The girls are back home and I’m glad we are all back together as a family. ❤️
I went in to see the oncologist before my covid test today because my pain is not under control anymore. I’m going to keep going with the long-acting morphine, but I’m going to switch to Dilaudid for breakthrough pain during the day. I’m hoping that will help.
After he poked around on my back and ribs, the pain is from the T9 area where I had that cement put in and it is radiating around my left side for some reason. My entire back hurts to touch or lean against something. It’s just all very tender.
I was in a lot of pain after he poked around on my back and ribs. As I got up from the table and walked a few feet back to my chair, I was out of breath. That was the first time I realized I was out of breath from pain. I just was thinking I was out of breath from being out of shape. Tom says he has noticed that and known it for a while.
Around 2:30 today I took Dilaudid and it took the edge off my pain. I noticed it didn’t hurt quite as much when I got out of bed. I have to figure out the exact dosage and how often I want to take it. It of course has the side effect of constipation just like all the rest!
He also recommended calling the orthopedic doctor and seeing if they could do a steroid shot near the T9 area to see if that would help. We’re not sure if we’re dealing with bone pain or nerve pain.
We have to be at the hospital at 6 a.m. on Thursday morning for my port placement. It’ll be nice to have that done so early in the morning so I can have the rest of the day to relax.
Chemo officially starts on Monday at 2 pm. If my port isn’t clogged, it should only take a few hours from what I remember. Someone asked me the other day how long I will be taking this chemo for. The answer is, for as long as it works. Then I will switch to another one. I will do that for the rest of my life until we are out of options, or we decided that my quality of life is too horrible and we decide to stop. I’m spending some time reading back through my blog so I can remember what it was like during this specific chemo drug.