Hellooooooo from freezing Washington. It’s been a week filled with snow days and late starts for the girls and it’s been nice to have easier mornings this week. 🙂
My new medicine, Piquray, arrives via FedEx on Monday. Without insurance it costs $20,000 a month. My co-pay is $0 – which I guess means I already hit my out of pocket max 16 days into the new calendar year or it’s billed differently than regular prescriptions. I have no idea. I’m just very grateful for insurance!
Anyways….moving on from that ridiculous price….I think I am going to start it Tuesday evening. That gives me 3 days on the half dose during the week and then the first two days of the full dose on the weekend when Tom is home. I’m going to clear my schedule for those first 3 days and have rides arranged for the girls as I’m unsure of how the side effects will hit me. Reading through posts in the Facebook group I found, sounds like this medicine is a pretty tough one. Everyone is different, yet everyone is talking about something hard. I’m pretty scared of it right now.
In preparation for the new medicine, I started taking Zyrtec (in hopes of not getting a bad rash). It turns out that that helps with itching from pain meds! Hooray!!!! My pain has been under control for the most part yesterday and today without itching! I hope it continues to help!
Wednesday morning I met with a christian counselor for the first time. I was encouraged to do so by many different people and finally got to the point where I couldn’t handle much of anything and made an appointment. I am going to be working with Angela Swanson, who I know many of you know. I pray the Lord with use her to help me process through some of the things I am struggling with.
Over the next few days will you pray that my body will respond well to this new medicine, that the side effects will be minimal and that I will not worry about i? Also, please pray for Tom and I as we are still very discouraged and upset about last weeks scan results. We are both pretty depressed and it’s been a very hard week. The unknown weather has made it so he worked locally for a few days this week, so we had a little more time together, which was wonderful!
Sending you lots of love and prayers for peace. xoxo
Praying God will use this medicine to fight this battle. God is with you & on your side. It’s understandable that you & Tom are depressed & God understands better than anyone our thoughts, fears & emotions. I will continue to pray for you & your family. Our ways are not his ways & there is so much that we can’t comprehend, but He is perfect in all things. It breaks my heart at times knowing what you’re going through & all the pain & difficultly.
Prays for your body handling the medication well and that God will ease your mind. Prayers for you and Tom for great results on the meds and make the depression a thing of the past. I love you Jennifer
Praying for peace and comfort that only God can bring. So glad you met with someone, talking through hard times can definitely help.
I’ll be lifting you up as you start the new meds. I’m so sorry.
Love to you all.
May the Lord meet every need that you have and then some!! I promise to pray every day for you, your girls, Tom, your doctors, medications, reactions, your counselor and a MIRACLE!! HE IS YOUR ROCK!!! Hugs!
Praying for you, dear friend. Thank you for the update and know that I am praying for you often! We love you! ❤️
I’m so encouraged to hear how the Zyrtec is taking away your pain away!
It’s very good that you have consented to Christian Counseling. You are made up of physical & spiritual parts which are both fighting this battle!
I believe that God is before you and has prepared each step of your journey. My prayer is for you to see Him in the tiny details and feel joy!
Lovingly,
Marilee
Thanks for the update, Jennifer. We have been praying you into this new medication, and we know that God hears our (and your) prayer, so He is leaning in to listen and care for you. He is your Shepherd. He will carry you. I’m glad that you are going to see the counselor so you can process the emotional side of all of this, too. Great decision!
Sweet Jennifer, your transparency humbles me. Each post draws me closer to you and your family in prayer. May God continue to bear you up against this battle. I know He’s with you every step of the way, even though it may not feel like it. God never changes and He cannot lie. His promises are our hope and give us courage. May His Holy Spirit bathe you in His Word constantly. My prayers are that His power-filled scripture will blanket you with His love and calm your anguish and pain. As your Sister-in-Christ I send my love and prayers, wishing I could hold you in my arms. May God bless you each day with peace-filled moments and hope in this new medication. My eternal love …
Praying for you and Tom and the girls! May God give you peace in your heart and take away your pain, physical and emotional. With lots of love—