My trip to the infusion center on Monday was the longest one I have ever had. I was there from 11am – 6:20 pm. My hemoglobin level has been creeping down and yesterday it got low enough that we had to call the Dr. before starting chemo. He approved chemo because all of my other labs were ok. However, he ordered a blood transfusion for after chemo. That’s why I was there so long.
Besides the log hemoglobin level, I have been sleeping A LOT and have severe fatigue. I’ve been getting up just before lunch, and napping on and off, and still going to bed around 8. I then snooze on and off for a bit and then sleep through the night. I’m sleeping too much. Hopefully the blood transfusion will help with that and the severe fatigue.
I have never had a blood transfusion before and it was strange to see red running through a tube and into my port instead of a clear fluid. My body has handled it well so far and I’m thankful for that.
Today I had to wake up to an alarm, but have not taken a nap and definitely have more energy than I have for the past week. I wouldn’t say I had a lot, but enough to notice a difference.
While I was there yesterday, Dr. Otso came by and upped the medicine in my pain pump again. Today, I have been doing the bolus’ with the pain pump (extra medicine) every two hours, but I have only had to take 2 oxycodone pills. TWO PILLS! Usually by this time of the day (4:45pm) I would have taken 12. Hooray! I would say we found a good level for now and can start thinking about weaning down a Fentanyl patch in a week or two. I want to let this settle for a bit and make sure it stays stable.
That’s it for now. Thanks for continuing to pray for our family.
I’ve been thinking and praying for you. What a long long day! Hang in there. I love you.
Continuing to pray for you, my dear one!
I read this today, and thought of you first!
“Dwell in the eternal life you have been given in Jesus. Abide in the vine. Let it flow through you, grow into you. Send your roots down deep into God’s presence, grace, and love, for your heart is the garden of God.”
~Bob Holmes
I love your heart and that you brought me back to that garden.
Praying for all of you!
I hope you continue to feel better and can gain some energy.
Saying prayers and sending hugs!
We continue to pray for you and the family daily dear Jennifer. So grateful that you share and we have the privilege of lifting you to our Father who hears. We love you, Chuck and Bobbie
We continue to pray for you and the family daily dear Jennifer. So grateful that you share and we have the privilege of lifting you to our Father who hears. We love you, Chuck and Bobbie
We continue to pray for you and the family daily dear Jennifer. So grateful that you share and we have the privilege of lifting you to our Father who hears. We love you, Chuck and Bobbie
We continue to pray for you and the family daily dear Jennifer. So grateful that you share and we have the privilege of lifting you to our Father who hears. We love you, Chuck and Bobbie
We continue to pray for you and the family daily dear Jennifer. So grateful that you share and we have the privilege of lifting you to our Father who hears. We love you, Chuck and Bobbie
After reading, I’m so grateful you are at a better balance of pain management and energy from good, red blood!! May this day you be filled with His joy and strength to continue to share Him with all who are near and dear to you!!
Daily, my friend. The Holy Spirit presses you on my heart throughout the day. Pray without ceasing. We love you.
So good to hear the good report. I continue to pray.
Keeping all of you in my prayers as you navigate these challenges.
Praying for peace, comfort, joy and smiles in your home this weekend.
You are in my heart and prayers each and every day. I love you dear friend…
So glad that you have found a good way to reduce your pain and that the infusion made a difference to your energy level. Hopefully it helped your anxiety a little, too? I will continue to pray for you, my friend.