I was having a lot of pain on Tuesday evening and by 3a it became unbearable and my oncologist recommended I go to the ER.  Tom called 911 because I wasn’t able to get out of bed, much less into the car on my own. 

The ambulance arrived and somehow managed to get me out of the house without waking the girls.  Tom let them know what was going on and one of my friends came over super early to be with them when they woke up.  The ER was a pretty slow process, but they did run a number of tests and started an IV to get my pain under control.  The two main concerns were the pain in my back and my difficulty breathing.  The most recent CT scans showed some fluid accumulating around my right lung and hinted at a possible infection. 

After several hours, they decided to admit me, primarily because they were concerned about possible pneumonia.  My oxygen levels weren’t stable and everytime they took me off oxygen support my blood oxygen would drop into hypoxic levels.  Because the hospitalization was lung related, that triggered a potential COVID diagnosis.  I was given a COVID test and moved to a quarantine area of the ER.  Tom had to leave and I wasn’t allowed any visitors.  Initially I felt abandoned, alone without a call button or the pain medication I had scheduled.  Fortunately, that was quickly remedied and ultimately the care was good. 

I was transferred to a COVID possible room in the hospital later that evening,  I was really groggy and don’t remember a lot of it.  Later Thursday morning, my COVID test came back negative and I was able to move to a normal wing within the hospital. 

Fortunately I can have visitors again (though only one per day) and Tom is sitting with me now (and ‘Tom’ is actually writing this blog post for me…if that isn’t obvious by the very different writing!).  I have more tests today and still waiting for some clarity on next steps and how long I will be at the hospital.  The blood culture for pneumonia takes 24-48 hours to get back.  I am hopeful for an update (and a return home) soon. 

I wanted to post something sooner, but wasn’t able to.  I have been pretty sleepy so it may take me a little while to respond to text messages.  Thanks for continuing to pray for our family. 

Update tonight:

Pain is more under control but still the – problem is not fixed.

The CT today was compared to the one Dr Leung did a couple weeks ago and there is more fluid around the right lung, probably from the cancer and probably causing the pain. They are going to try and drain that tomorrow.

With the pain being under control, I have been able to get up out of bed and walk down the hallway.

I met with a few people from two different therapy departments that are helping me think of ways to do basic things at home with the issues that I’m having. That was very helpful.

I met with a palatine care nurse practitioner and she is helping me look at how we will manage the pain outside of the hospital.

Constipation and bloating – That needs to be resolved before I leave the hospital. I compared a picture of me now to my pregnancy pictures, and I look 4 months pregnant. My stomach is the exact same shape as when I was 4 months pregnant with Molly. Something is definitely wrong.

There have been some very uncomfortable parts to the day, but overall it was a good day and I was even able to help Ashley with homework while sitting in the hospital.

And that picture reminds me about my oxygen. I am still on oxygen. We need to resolve that as well.