Another day at the infusion center…a long day….an hour longer than normal.
It started with waiting 15 minutes to get a room.
Then another 15 to see my nurse.
Then my first port access didn’t feel right, almost like saline was just going in my body and not in the vein through the port. Something was definitely not right! So I was poked again.
Then blood was drawn. She realized 10 minutes later she needed more for an additional test. Not a big deal, just more time.
Meds took forever to come. My chemo didn’t even get to me untill 3 hours after my appt started. The pharmacists said they somehow didn’t see it. Hum….well thanks.
I didn’t have anything else to do, so it’s not a big deal. Things usually go so smoothly. But not today! Oh well. 🙂
Because everything was taking so long I had the chance to talk for a while with my oncologist when he stopped by. That was great!
Since I don’t usually see him in person, just over zoom, it was nice to see him face to face. Here’s what we talked about:
• Im up to 160 on the scale (very bloated and definitely constipated). So I’ve have gained 10lbs in the past month.
• I think I might have restless leg syndrome. If it’s not bad, I should just deal with it or I have to take another pill. He would rather not have to give me another pill, but will if I need it.
• 4 days to wean off of my steroid is ok.
• If I don’t have a bowel movement one day, drink some magnesium citrate the next. Don’t let it go too long.
• My back pain is possibly from bloating and constipation. Scans will show more.
• I moved my 2 scans up a week because of pain – CT is Wed. the 17th and my bone scan is Tuesday the 23rd.
• My breathing sounded really good.
• Either COVID shot is fine to get.
• Alprazolam is fine to take multiple times a day.
• I can use Lunesta and Alprazolam to sleep! Hooray!
So sorry for all the hang ups for your appointment. As if just being there and all the pokes etc. wasn’t enough, you don’t need delays. BUT awesome you talked with your oncologist in person. Taking your concerns and tests to the Lord in prayer. HE IS YOUR ROCK AND YOUR REDEEMER! Love you, daughter of the KING!!
I’m so glad you can use the meds to sleep! Sleep is such a valuable part of feeling better. I’m praying specifically for relief from pain and for your system to flow so you have less bloating.
Big cyber hugs to you!
Wow! What a long day with so much waiting but thankful it allowed you the opportunity talk to the dr about so many things and get answers on what you can do. Will be praying about these upcoming appointments.
Sleep well ❤️
It’s so good to hear an update, Jennifer, despite your exhausting day. Praying for you and your precious family every day! I hope tomorrow can be peaceful and restful before the next appointments .
Glad that the long day worked out to get some answers. I continue to pray for you. I see wonderful small steps happening.
So good to read an update this morning and I am glad that you had a good visit with you oncologist. Contin8to pray for you. Hugs, Wendy
Love and prayers to you and the family
Oh wow, hang in there! It is like everything else during covid-unknown? I have RLS and if it gets bad enough, you may want to take meds-it can be torture.
Think of you often! How are the Small girls? What a year for everybody, especially you guys! You are amazing!