A lot has happened since I wrote last. My attention span isn’t very long, but I’ll try my best to give you an update.
I came home from the hospital with a pain management plan and a bowel management plan. Ready or not….we were headed back home!
Once we got home, thanks to Amazon and a medical supply store near the hospital, we got a few things to make things possible for me to function at home without Tom having to help me with everything! I am using a cane to keep me steady as I walk. We have a long reach toilet aid tool…quickly moving on…a bed assist rail, a beautiful new toilet seat with handles, a handle in the shower for balance and a grabber/reacher tool so I can pick things up off the floor (or try and pinch the girls).
I feel so old!
The new toilet seat it getting a lot of use – you’re welcome for that piece of information. This is the first day in a few weeks that my diaphragm hasn’t been severely painful! I think I only look 3 months pregnant instead of 4. We still have a ways to go, but the Lactulose, Miralax, Dulcolax, Metoclopramide and Senna are all doing their job. At some point, we’ll be able to slow down or even cut one or two out, but not for a bit. So for now, I’m staying close to the bathroom. 🙂
It’s funny that I’m this far into a blog post and haven’t even started to talk about the new chemo I started on Monday!
I was still in horrendous pain on Monday when I went in for chemo. Dr. Leung came down and revised my pain meds a little more and it seems to be working! Thank you Lord!! They also gave me some pain meds via IV at the infusion center, which helped ease the pain for the ride home!
Because I know you all care – here’s what’s taped on the back of one of our cabinet doors:
Plus there is Chemo on Mondays (2 weeks on, one week off) and Zometa (once a month).
If you need to pick your jaw up off the floor, go ahead.
I can wait.
That’s a lot of medicine and supplements.
This is what my journey looks like as I fight Stage IV breast cancer. Not everyone will take this approach. But for me (us), we are still happy with my care and treatment.
My Oncologist recommended seeing someone up at Seattle Cancer Alliance to talk about clinical trials and I had the appointment booked until yesterday. I know that there are different types of clinical trials and different levels. But that’s about all I know.
However, right now, I just need to get poop out of my body!! SERIOUSLY! I can’t think about anything else.
So after I broke down while looking at my calendar yesterday, I decided that that is going to wait for a bit!! I cancelled the appointment.
So what else?
A few times today I have noticed my hands have felt warm and little tingly. Peripheral neuropathy is a common side effect with this new chemo I am on, so I’ll keep notes on that. I was up and down today more than yesterday, so that’s great.
On top of this craziness, life still goes on….friends die, another friend finds out a new diagnosis, remote learning continues, COVID continues…the list goes on. As I was thinking about all these things at the infusion center the baby song went off twice. (Every time a baby is born at the hospital they play a few bars of “Nighty Night and Good Night”). I heard that 2 times when I was at the infusion center and even more when I was in the hospital for a few days. I love that!
I’m struggling to get past all the negative and the hard parts of life (which seem like almost everything). Please pray that I will try and look for the good in every situation, instead of just dwelling on the bad.
Coming up this week – we have Tom’s parents and Alyssa visiting. 🙂 I have chemo on Monday and I also have an MRI on Monday to look at my abdomen, specifically my liver, but also to see how the stool and gas is moving out.
Thank you for continuing to pray for us and for caring for us in as many ways as COVID allows. 🙂