I’m sorry you found my blog.
HA! What a funny thing to say on a blog!! But seriously, if you landed here, you either know me, or know someone that has cancer. That’s why I’m sorry!
I hate that word.
I remember sitting in the oncologist’s office in my early 20’s listening to the Dr. tell me that while it was not likely I would get Ocular Melanoma like my Mom, 3 out of 4 people would be diagnosed with some sort of cancer in their life. Since all of my Grandparents and my Mom have died of some type of cancer, I knew my day would come. I just never thought my diagnosis would be the day after my 41st birthday and as a mother of a 10, 7 and 6 year old.
Fast forward 4 years (October 2019) and the cancer has returned in other bones. So here we are, ready to fight again…and looking to be on some sort of treatment for the rest of my life.
This blog is my journey as I fight to leave cancer behind and move on in my life.
I should probably back up and introduce myself . . . my name is Jennifer. I’m a Christ follower, married to an amazing man (who happens to be a chef turned Co-CEO of a restaurant), have 3 beautiful daughters and I’ve been diagnosed with Stage IV Breast Cancer which originally spread to my sternum, but has now spread to quite a few other bones as well.
I know it can be confusing when you stumble upon a new blog, so let me help you get started.
- I have a blog to keep track of my thoughts and to let friends and family know what’s going on.
- You can get to know our family or read my personal testimony here.
- As I’ve been going through different procedures, I’ve written down what it was like. You can find a list of those over in the side bar (or down at the bottom if you are on a mobile device).
- Click here to receive an email when I publish new posts.
- And finally, if you noticed above that I’m married to a chef and think that must be the MOST AMAZING THING EVER, click here and browse through my blog about what it’s really like to be married to a chef. (I love blogging. Can you tell?)
Here’s what’s going on with me right now . . .
Tom and I just go off the phone with the Dr. and it looks like we are going to change chemo pills. Even at the half dose, my body just can’t seem to tolerate it without huge side effects, making life much harder that it would be than if I was just dealing with the cancer and no chemo.
The new pill is called Xeloda. It has many of the same side effects since it is a chemo pill, but the added ones to this are hand/foot syndrome (rash and/or severe dryness on the hands and feet), tingling in the fingers and hair thinning. Everyone responds different, so we’ll see how I do. I’m going to take a week off and then start the new pill. I will continue to get the bone strengthening infusion each month, as well as the hormone blocking shots.read more…
I’ve taken the half dose of the chemo pill for about 2 weeks now. The side effects are under control, for the most part. It still seems pretty tough on my body, but for now, it’s tolerable, since we are stuck at home anyways!
Tuesday, I had my monthly infusion and shots. I’m always a bit wiped out from those. Today, the upper part of my behind is numb. The shot on the left side hurt going in and felt a little different. I think she might have been a little father over than normal and got close to a nerve. It’s not really painful, it just feels different than it normally does.
My pain is mostly under control. I just have to be very careful in what I do. If I do anything for more than 5 minutes (cook, clean, laundry, organize) my back really hurts, even all on the meds. Some days I just push through because I want to do something and feel productive. Other days I don’t. I’m getting better about asking the girls to do stuff around the house. It’s good for them and they have plenty of time!read more…
Scans showed the cancer has grown a little in some places, especially in my lower back.
Since I haven’t really given this current medicine a consistent try, I’m going to continue on it at the half dose level, working to manage side effects.
I’m feeling pretty good today, just really tired and fatigued.
I called first thing this morning and found out my insurance had approved the scan. The scan was uneventful and went well. Unfortunately, Tom had to sit in the car because they’re not letting anybody but patients in. That was a bit of a bummer.read more…
I am scheduled for a CT scan tomorrow (Tuesday) at 1 pm, as long as my insurance has approved it by then. We have new insurance and this is my first scan with them, so I’m not sure how quickly they approve things. Plus, nothing is normal right now, anywhere!!read more…
I talked with my oncologist on the phone today, instead of having an in-person appointment. To sum it up quickly, I am going to go back on the chemo pill (Piqray) but only a half dose.read more…
While today started off really rough with nausea and throwing up, this afternoon and evening has been a little bit better. I’m very thankful for that. I’m feeling a little bit nauseous right now, but just took something for it about a half hour ago. I pray that will help.read more…