I was planning on waiting to share all this after we meet with the oncologists on Friday, but this is just too hard. We have been slowly telling people as needed, but I’ll be honest, I feel like we are falling apart. None of us know what to do. I apologize if you are reading this and I’m not telling you in person, but there were multiple spots on my spine, hips and possibly my sternum on my CT scan, meaning the cancer has returned. I’m reaching out for help as needed, but there’s not a lot any of us can do right now and it’s just hard.(more…)
insurance denied the pet scan until other imaging is done to show that it is medically necessary. My oncologist ordered a CT scan and a bone scan. The CT scan has been approved and is scheduled for this Monday at 10. Still waiting on the approval of the bone scan.
9 Dr. Appointments or scans in 5 weeks….yay! I just love it when I see all those appointments on my calendar….ummm….not really.
But seriously, here’s what’s coming up (or just happened)…
10/1 – Orthopedic surgeon (more…)
My port is gone. The procedure was done in about 20 minutes. The numbing process wasn’t comfortable, but once that was over, I didn’t feel anything.
It feels very strange to put my hand where the port used to be and have it be flat. It’s like something is missing.
I asked the surgeon if I could take a picture of it. I knew you would all want to see it too! You’re welcome! 🙂 (more…)
I got the girls off to school this morning and watched TV for a few minutes before Linda came and picked me up. I talked with Tom on the phone for a bit too. 🙂
We checked in this morning around 10 and only waited about 5 minutes. Then they took me back, I signed a bunch of papers and changed into my gown. It looks ridiculous of course, but a hose attaches to it and I can control the temperature. I just love these and have had them for all my surgeries. 🙂 Linda and I agreed that someone needs to make these for home use!
I’m not sure of the conversation between Linda and the nurse as the anesthesiologist was trying to find a vein to put my IV in, but I think because of it, I was able to keep my glasses on until I fell asleep and then I woke up with them on!!!!!!!! What a HUGE blessing that was. It was the first time I have ever seen the inside of the operating room. It was not as exciting as I thought it would be, but I am thankful everything was not totally blurry. I remember the anesthesiologist moving my arm and putting something in my IV and then I was waking up. 🙂 How lovely!!
It’s another “Night Before….” post. It’s so strange to think I’m having surgery tomorrow.
Today was very ordinary. I went to the gym after I got the kids off to school, ran a few errands, took our 6th grader and a friend to the local taco truck for lunch, had 3 extra kids in our house to hang out and play and enjoyed an eggnog latte while chatting with a neighbor. Now the girls are watching TV and I am doing a little Thanksgiving prep. It was just a regular day here.
But that all stops at midnight when I will all of a sudden become starving and dying of thirst, because I know I can’t have anything. Haha! Hopefully I will be asleep at midnight. 🙂
I’ve said before that it’s sometimes difficult to get up in the morning and go to my “job”. I haven’t had a job with set hours in 11 years, so this having to be out of the house each morning thing has taken some getting used to.
I LOVE routine! Our home operates much better when we have a routine going. Radiation has forced us to be on a routine Monday – Friday and has made the summer go much smoother (at least so far). The weather has been HORRIBLE, but the girls love going to someone’s house to play every morning and many afternoons we have fun plans as well.
We are adjusting well to this new routine of daily radiation. I’m enjoying getting to know my technicians well and have met a few ladies in the waiting room this week. So far no side effects and I’m feeling really good. I even have sore muscles from working out! AND it’s a 3 day weekend – no radiation on Monday because of the holiday!! Yay!!!
On Monday when I met with the Dr. he said to expect side effects to start after 10 treatments. I’ve heard from others to expect them about half way through. Who knows when and if they will appear, but so far this “honeymoon period” as the Dr. called it, is fine. It’s nice to not be in pain (except for the sore muscles from exercising. It’s nice to not have any fatigue, only a tired body from going to the lake and riding bikes with the girls. 🙂 (more…)